January 5th, 2011

nice article on being a parent on the spectrum

http://cap.autistics.org/twohats.html

Better still, it has pointers to more sources.

My sister-in-law sent me an article from the 36 Am. J. L. and Med. 483 (American Journal of Law and Medicine), titled Autism in the U.S.: Social Movement and Legal Change by Daniela Caruso. It is a great summary; if you have access to LexisNexis you should go read it. The introductory and concluding paragraphs are weak and there's a somewhat important error in the description of the vaccine debate, but those are all very minor issues with a really good summary of the landscape of activism and the various legal issues involving autism (legislative, judicial, the education system, health insurance, the vaccine court, etc.).

My sense, however, was that one of the missing pieces was the organizations and activism led by people who identify as on the spectrum (whether with an official diagnosis or not). I went over and read some more stuff over on ANI's website, which I had found before, but it kept nagging at me that I was seeing a lot of remarks about NT parents and children with autism (or adults who had been raised by NT parents); I was not seeing a whole lot about parents with autism.

This was a nice introduction to a potentially rich and rewarding research project. Which I will not start tonight.

this should not make me laugh

http://www.growingyourbaby.com/2010/07/22/voice-analysis-may-help-diagnose-autism/

"The machine records the speech of a toddler throughout the day, then analyzes the sounds and noises of each word. Toddlers that pronounce certain words differently would then be able to get early intervention."

I can't stop laughing. It's for kids between 10 months and 4 years of age. Wonder what it does for (autistic) kids who don't produce "speech...throughout the day"?

If I worked at it, I might be able to be pissed off at the idea that here's yet another way that parents with resources can get help for their children who need it a whole lot less than some other kids. Mostly, tho, it just makes me laugh.